AETNA RISING STAR AWARD FINALISTS

The ALD Alliance helps families across the United States that are newly diagnosed with adrenoleukodystrophy (ALD) by giving them the resources they need to fight this rare and devastating disease. This fight begins by making sure every baby born in the United States is tested at birth for ALD. The ALD Alliance was established to address the need for information and newborn screening with respect to Adrenoleukodystrophy. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of the disease. To advocate for ALD newborn screening in every state. To gather and provide current, functional information and provide financial support to families of children with ALD. To fund research efforts that will identify new treatments, therapies and ultimately, a cure for ALD. To raise awareness of ALD and increasing the probability of early detection and treatment.